I am really struggling tonight. I am about as ill as I have been in a long time and the Docs can't seem to get it figured out. In addition, my physical disabilities are as painful and debilitating as they have ever been so that continues to be an ongoing and most probably a life-long struggle.
I have noticed from the reactions of people around me that my illnesses and disabilities once again seem to be alienating me from my friends, my family and the world in general. Since I have become a Christian, my life changed in many, many ways...almost all of them positive. As a result, I became more open socially then ever before and really opened up as a person. As a result I let some people in to my life that I never would have before. And I really enjoy these relationships...
But I sense them eroding and it is my health and disabilities that once again seem to be driving a wedge between me and people in general. People cannot understand how difficult it is for me to function and do the same things that they can do and even though they tell you it's OK and not to worry...I can sense thy have grown tired of it and have kind of moved on to other things. I could be wrong but it's my perception that my behavior has perhaps turned people away...
Of course this just happens to be a time where I've felt about as alone and isolated as I ever have since I became a Christian. I don't expect life to be fair, I certainly realize that nobody owes me anything but my life truly happens to be very HARD right now and I am really hurting inside.
I will admit that I am feeling quite fearful about this latest diagnosis...and I just feel very alone and isolated right now like I have nobody to turn to but myself for solace...and let's face it...I am my own worst enemy at times! I realize this is a moment to turn toward GOD and I do but I feel so alone...
I guess what bothers me the most about this is that I fear that people may think I'm faking this because they can't possibly understand what I am going through and how hard I try to connect others. No they can't relate to my situation and it probably just seems to them like I'm acting ODD at times...which because of my overall situation...I AM!
All I can really do is pray...and re-connect with GOD. Easier said then done, of course.
Over the last two weeks I have been awake ALL Night, every night by myself and I have really had my FAITH and my SANITY tested...I mean REALLY tested! I am now to the point where I dread the coming of nightfall...I am almost afraid of it.
I miss my friends but don't want to burden them anymore. I feel so trapped and so alone right now though I know in my heart that I am not alone. I can't help but wonder why with all the great things that have been happening in my life lately, why I am suffering again so soon after all the pain and difficulty from my past. Some things are NOT for me to know...I suppose.
Well my friends I am going to close for the night. I am under no illusion that I will sleep...like a specter of a shadow that was my former self...I'll glide through the darkened hallways hoping to discover my former energy or some semblance of a life worth living again. I'm hurting...
(Painting by Claude Monet)